Junelle Speller – The Pulmonary Fibrosis Foundation Community Registry
The Pulmonary Fibrosis Foundation (PFF) Registry is collecting data from patients with pulmonary fibrosis (PF) or interstitial lung disease (ILD), lung transplant recipients who have had PF or ILD as well as caregivers and family members of patients to help advance medical research.
It was a pleasure to talk with PFF Vice President, Junelle Speller around the importance of participant-reported data in advancing research, how the Community Registry will help to improve patient care and the impact awareness of the registry will have on obtaining a clearer picture of PF and ILD.
Questions
- How will participant-reported data help to accelerate medical research in PF and ILD? (0:10)
- Please can you outline the importance of the Community Registry in providing insight into patient lives and how this will help to improve patient care? (0:57)
- How important is it to promote awareness of the PFF Community Registry among patients, family members, and caregivers? (2:54)
Disclosures: Junelle Speller has nothing to disclose in relation to this video interview.
Support: Interview and filming supported by Touch Medical Media Ltd. Interview conducted by Victoria Jones.
To find out more visit the website here.
