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Columbia University Medical Center, New York, NY, USA
Dr Claudia Chiriboga is Professor of Neurology and Pediatrics at Columbia University Medical Center, Clinical Care Director of the Pediatric Muscular Dystrophy Association and member of the Spinal Muscular Atrophy (SMA) Clinical Research Center at Columbia University, New York, NY, USA. read more
Dr Chiriboga’s clinical research experience has included National Institutes of Health (NIH)-funded cohort studies of neurodevelopmental disorders, as well as clinical trials. Of late, her work has focused on SMA translational research; she has participated in numerous clinical trials in this field, including the ground-breaking, first-in-human SMA antisense oligonucleotide studies.
Dr Chiriboga has served on NIH grant review committees and has been an associate editor and journal reviewer for paediatric and neuromuscular medicine journals.
Dr Claudia Chiriboga discloses: Advisory board or panel fees from Avexis/Novartis, Genentech, PTC Therapeutics and Roche. Grants/research support from Avexis/Novartis, Biogen and Roche. Speaker’s bureau fees from Biogen and Genentech.
University of Florida, Gainesville, FL, USA
Dr James Wymer is a neurologist and professor practising at the University of Florida in Gainesville, FL, USA. read more
Dr Wymer specializes in the diagnosis and management of neuromuscular diseases including amyotrophic lateral sclerosis (ALS), SMA, muscular diseases and peripheral neuropathies. He has extensive clinical research experience and has been the principal investigator in numerous clinical trials including studies of ALS, primary lateral sclerosis, diabetic neuropathy, multiple sclerosis, migraine headaches and epilepsy. He is the director of the motor neuron disease clinic treating patients with SMA.
Dr Wymer is a fellow of the American Academy of Neurology and the American Association of Neuromuscular and Electrodiagnostic Medicine. He is also a member of several national consortia in neuromuscular diseases.
Dr James Wymer discloses: Advisory board or panel fees from Biogen and Genentech. Grants/research support from Amylyx and Annexon.
University of Southern California, Los Angeles, CA, USA
Dr Lisa Fukuzato is a Doctor of Physical Therapy and a board certified neurologic clinical specialist at the University of Southern California (USC). read more
Following the completion of her doctorate by coursework at USC, Dr Fukuzato completed a neurology residency. She has clinical experience in all settings including acute care and rehabilitation in inpatient and outpatient settings.
Dr Fukuzato specializes in custom wheelchair seating and durable medical equipment evaluations.
Dr Lisa Fukuzato has no interests/relationships or affiliations to disclose in relation to this activity.
Chicago, IL, USA
Mr Hugo Trevino is a first-generation Mexican American with SMA type 3 and a disability services specialist in the Disability Resource Center at the University of Chicago in Illinois. read more
Mr Trevino has a BA from the University of Illinois at Champaign Urbana (UIUC) and a Master of Education in International Higher Education, from Loyola University, Chicago.
Mr Trevino is passionate about helping people with disabilities with a focus on education, healthcare and self-advocacy. He works at the University of Illinois in Chicago, where he ensures students with disabilities have equal access to higher education. Mr Trevino strongly believes that if people with disabilities have equal access to education and healthcare, it will encourage self-advocacy and ultimately improve the landscape for disability rights.
Mr Hugo Trevino discloses: Consultancy fees from PTC Therapeutics.
Sheffield, OH, USA
Mr Jim Willison is an adult living with SMA type 3 and has participated in a number of clinical trials for SMA through the Ohio State University Medical Center. He has a degree in electrical engineering and currently does voice-over work for training and explainer videos and commercials.
Mr Jim Willison has no interests/relationships or affiliations to disclose in relation to this activity.
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